{"id":13025,"date":"2023-03-21T14:56:38","date_gmt":"2023-03-21T14:56:38","guid":{"rendered":"https:\/\/www.lymphoma.ca\/how-lymphoma-canada-came-to-be-stories-from-our-founders-deborah-sterritt\/"},"modified":"2023-03-29T15:34:31","modified_gmt":"2023-03-29T15:34:31","slug":"founders-stories-deborah-sterritt","status":"publish","type":"post","link":"https:\/\/www.lymphoma.ca\/fr\/founders-stories-deborah-sterritt\/","title":{"rendered":"Comment Lymphome Canada a vu le jour : Histoires de nos fondateurs \u2013 Deborah Sterritt"},"content":{"rendered":"[vc_row type=\u00a0\u00bbin_container\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb][vc_column_text]\n
\"Deborah

Deborah Sterritt et ses petits-enfants<\/p><\/div>\n

En 1995, on diagnostique chez Deborah Sterritt une forme indolente de lymphome non hodgkinien. Elle re\u00e7oit un traitement agressif. Mais en janvier 1998, Deb apprend que le cancer a r\u00e9apparu et qu\u2019elle doit subir une greffe de moelle osseuse. \u00c0 l’\u00e9poque, le taux de survie d’une telle intervention n’est pas \u00e9lev\u00e9, et il ne s’agit pas non plus d’une th\u00e9rapie \u00e9prouv\u00e9e pour son sous-type de lymphome. Dans le doute, elle prend le temps d\u2019examiner les options disponibles afin de prendre la meilleure d\u00e9cision pour sa famille. Malheureusement, il n’existe pas d\u2019organisme canadien consacr\u00e9 exclusivement aux cancers du syst\u00e8me lymphatique, rendant difficile la recherche d’informations pertinentes sur la maladie et les options de traitement disponibles pour les patients canadiens dans sa situation.<\/p>\n

Gr\u00e2ce \u00e0 Internet, Deb se renseigne sur les nouvelles th\u00e9rapies et l’approche dite \u00ab attente sous surveillance \u00bb. Cette option lui permettant de surveiller son cancer sans d\u2019importantes r\u00e9percussions sur sa qualit\u00e9 de vie, Deb opte pour cette approche dans l’espoir qu’un autre choix th\u00e9rapeutique devienne \u00e9ventuellement disponible.<\/p>\n

Entre-temps, Deb continue \u00e0 se renseigner sur le lymphome. En 1998, elle participe \u00e0 un congr\u00e8s, organis\u00e9 \u00e0 New York par la Cure pour la Lymphoma Foundation (aujourd’hui la Fondation canadienne de recherche sur le lymphome). Ces deux jours lui permettent de croiser une centaine d’autres patients atteints d\u2019un lymphome et d’assister \u00e0 diff\u00e9rentes s\u00e9ances. C\u00f4toyer d’autres patients et en apprendre davantage sur le lymphome est pour elle une exp\u00e9rience r\u00e9v\u00e9latrice. Pour la premi\u00e8re fois depuis son diagnostic, elle est optimiste. La participation \u00e0 cette conf\u00e9rence est le catalyseur qui incite Deb \u00e0 cr\u00e9er la Fondation canadienne sur le lymphome (FCL).<\/p>\n

La cofondatrice de The Cure for Lymphoma, Barbara Freundlich, met Deb en contact avec le Dr Brent Zanke du Princess Margaret Cancer Centre. Deb, le Dr Zanke et trois de ses patients, Terry Creighton, Jane Mingay et le regrett\u00e9 David Pitblado se r\u00e9unissent alors pour discuter comment mettre des informations \u00e0 la disposition des patients canadiens atteints de lymphome. Telle est l\u2019origine de la Fondation canadienne sur le lymphome, devenue par la suite Lymphome Canada.<\/p>\n

Les activit\u00e9s de la Fondation canadienne du lymphome portent surtout sur la tenue de s\u00e9ances instructives pour les patients atteints de lymphome. Ces s\u00e9ances qui se tiennent g\u00e9n\u00e9ralement au Princess Margaret Centre, se d\u00e9rouleront plus tard \u00e0 Sunnybrook.onal sessions for lymphoma patients. These sessions were typically hosted on Saturdays at the Princess Margaret Centre, then later moved to Sunnybrook.<\/p>\n

Au d\u00e9but de l’an 2000, le Dr Zanke pr\u00e9sente l’\u00e9quipe de la FCL au Dr Connors, l’un des fondateurs de la Fondation canadienne de recherche sur le lymphome (FCRL), \u00e0 Vancouver. Alors que la FCL porte sur l’\u00e9ducation des patients, la FRLC a pour mission de collecter des fonds pour la recherche. M\u00eame si leur travail est diff\u00e9rent, les deux organismes poursuivent un m\u00eame objectif : soutenir les patients canadiens atteints de lymphome. De toute \u00e9vidence, la collaboration de ces deux organismes leur permettrait d\u2019obtenir de meilleurs r\u00e9sultats pour les patients \u00e0 l’\u00e9chelle nationale. Ainsi, en 2000, la FCL et la FCRL fusionnent pour former la Fondation canadienne sur le lymphome (aujourd’hui Lymphome Canada).<\/p>\n

Au cours des premi\u00e8res ann\u00e9es, en plus de fournir des renseignements aux patients atteints de lymphome, l’\u00e9quipe de Lymphome Canada d\u00e9cide de faire en sorte que les patients de tout le pays acc\u00e8dent \u00e0 des choix de traitement av\u00e9r\u00e9s efficaces. On met donc sur pied un comit\u00e9 consultatif scientifique (CCS) charg\u00e9 de recruter des membres, d’examiner et de recommander au conseil d’administration des projets de recherche \u00e0 des fins de financement. Puis, le r\u00f4le du CCS \u00e9volue, touchant un certain nombre de domaines, notamment le mat\u00e9riel \u00e9ducatif destin\u00e9 aux professionnels de la sant\u00e9. Ce fut un moment crucial dans l’histoire de l’organisme, dont Deb est encore fi\u00e8re aujourd’hui.<\/p>\n

Deb et l’\u00e9quipe initiale de Lymphome Canada ont particip\u00e9 avec d\u2019autres organismes des \u00c9tats-Unis, du Royaume-Uni, de l’Australie et de l’Allemagne \u00e0 la cr\u00e9ation de la Coalition du lymphome. Bien que la Coalition compte aujourd’hui plus de 80 pays, Lymphome Canada est fier de figurer parmi les premiers organismes \u00e0 l\u2019origine de sa cr\u00e9ation.<\/p>\n

M\u00eame si en 2004, Deb doit prendre du recul par rapport \u00e0 ses activit\u00e9s \u00e0 Lymphome Canada pour suivre un traitement, elle demeure active au sein de l\u2019organisme et lutte pour sensibiliser les gens au lymphome. Au cours des 27 ann\u00e9es \u00e9coul\u00e9es depuis son diagnostic initial, elle a appris et inform\u00e9 d’autres personnes sur les cancers du syst\u00e8me lymphatique. Elle a \u00e9galement aid\u00e9 des patients \u00e0 choisir des options th\u00e9rapeutiques qui leur conviennent le mieux.<\/p>\n

\u00ab Je crois sinc\u00e8rement que Lymphome Canada m’a sauv\u00e9 la vie. \u00bb \u2013 Deborah Sterritt<\/p><\/blockquote>\n

Pour Deb, l’objectif de Lymphome Canada consiste \u00e0 soutenir les patients canadiens atteints de lymphome en les informant et en leur permettant d\u2019acc\u00e9der \u00e0 des options de traitement efficaces. Nous sommes rest\u00e9s fid\u00e8les \u00e0 cet objectif gr\u00e2ce \u00e0 nos ressources pour les patients, nos webinaires et nos congr\u00e8s. Nous collaborons avec des professionnels de la sant\u00e9 et des d\u00e9cideurs pour financer la recherche et promouvoir l’acc\u00e8s \u00e0 des th\u00e9rapies novatrices.[\/vc_column_text][\/vc_column][\/vc_row][vc_row type=\u00a0\u00bbin_container\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb][vc_column_text]\n

\n

Faites une contribution pour nous aider \u00e0 poursuivre notre mission.<\/h2>\n

Lymphome Canada compte sur la g\u00e9n\u00e9rosit\u00e9 de donateurs comme vous pour poursuivre sa mission : donner des moyens d\u2019action aux patients et \u00e0 la communaut\u00e9 canadienne du lymphome par le biais de l\u2019\u00e9ducation, des services de soutien, de la d\u00e9fense des droits et de la recherche.[\/vc_column_text][nectar_btn size=\u00a0\u00bblarge\u00a0\u00bb open_new_tab=\u00a0\u00bbtrue\u00a0\u00bb button_style=\u00a0\u00bbregular\u00a0\u00bb button_color_2=\u00a0\u00bbAccent-Color\u00a0\u00bb icon_family=\u00a0\u00bbnone\u00a0\u00bb text=\u00a0\u00bbFAITES UN DON\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/secure.e2rm.com\/registrant\/startup.aspx?eventid=381927&LangPref=fr-CA\u00a0\u00bb][\/vc_column][\/vc_row]\n","protected":false},"excerpt":{"rendered":"

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She underwent aggressive treatment, however, in January of 1998 Deb was told that the cancer had returned. At the time, there were no Canadian organizations dedicated solely to lymphoma cancers making it difficult to find relevant information about the disease and available treatment options for Canadian patients, like herself. With the help of Dr. Zanke and three of his patients Deb, Terry Creighton, Jane Mingay, and the late David Pitblado came together to discuss how they could make educational information available to Canadian lymphoma patients. 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