{"id":1969,"date":"2013-07-18T15:54:59","date_gmt":"2013-07-18T15:54:59","guid":{"rendered":"https:\/\/www.lymphoma.ca\/le-webmestre\/"},"modified":"2022-01-19T19:32:31","modified_gmt":"2022-01-19T19:32:31","slug":"le-webmestre","status":"publish","type":"post","link":"https:\/\/www.lymphoma.ca\/fr\/le-webmestre\/","title":{"rendered":"Le webmestre"},"content":{"rendered":"

In 1996 a young man from Las Vegas, Nevada named Scott Pallack was diagnosed with non-Hodgkin lymphoma. Scott soon discovered that there was an unmet need for people with this uncommon form of cancer to connect and share their experiences.
\n<\/p>\n

par Greg Dafoe<\/h3>\n

En 1996, Scott Pallack, un jeune homme de Las Vegas, au Nevada, recevait le diagnostic d\u2019un lymphome non hodgkinien. Scott s\u2019est vite rendu compte qu\u2019il n\u2019existait pas de lieu de partage et de rencontre pour les gens atteints de cette forme peu commune de cancer. Les groupes locaux de soutien ne semblaient pas combler enti\u00e8rement cette lacune, si bien que Scott a sollicit\u00e9 la collaboration d\u2019un fournisseur internet local pour cr\u00e9er une liste de diffusion. Il l\u2019a baptis\u00e9e la \u00ab Non-Hodgkin\u2019s Cyberfamily \u00bb. Au d\u00e9but, tous les messages \u00e9taient \u00e9chang\u00e9s par courriel. Il y avait peu d\u2019adh\u00e9sions, mais en peu de temps, deux des membres du groupe ont mis \u00e0 profit leurs habilet\u00e9s pour mettre sur pied un site web qui ajoutait un compl\u00e9ment \u00e0 la liste de diffusion.<\/p>\n

La \u00ab Non-Hodgkin\u2019s Lymphoma Cyberfamily \u00bb a pris de l\u2019ampleur et a attir\u00e9 l\u2019attention du r\u00e9seau ABC, qui a pr\u00e9sent\u00e9 un aper\u00e7u du groupe \u00e0 l\u2019\u00e9mission matinale Good Morning America. Il est toujours possible de visionner la vid\u00e9o sur le site de NHL Cyberfamily. http:\/\/www.nhlcyberfamily.org\/downloads.htm<\/a><\/p>\n

J\u2019ai rejoint le groupe NHL Cyberfamily en 1998, lorsqu\u2019on m\u2019a diagnostiqu\u00e9 un lymphome non hodgkinien folliculaire. Le groupe \u00e9tait alors form\u00e9 de deux cents membres. Je cherchais des gens avec qui parler, qui acceptaient de partager leur exp\u00e9rience. Les statistiques alarmantes que j\u2019avais trouv\u00e9es en cherchant sur internet \u00e9taient simplement trop terrifiantes et suscitaient chez moi trop d\u2019anxi\u00e9t\u00e9. Tout comme Scott, je souhaitais communiquer avec des gens qui sauraient me guider vers des attentes r\u00e9alistes. Un groupe qui fonctionne par courriel pr\u00e9sente l\u2019avantage d\u2019une pr\u00e9sence de jour comme de nuit, plut\u00f4t qu\u2019une heure ou deux offertes chaque mois par le groupe local de soutien. Il \u00e9tait possible de \u00ab parler \u00bb avec quelqu\u2019un \u00e0 tout moment. Que ce soit pour poser une question \u00e0 propos des traitements ou simplement pour apaiser des craintes, le groupe est toujours pr\u00e9sent. D\u2019avoir acc\u00e8s \u00e0 cette nouvelle cyberfamille me procurait beaucoup de r\u00e9confort.<\/p>\n

Il y a maintenant 15 ans que je suis membre de la NHL Cyberfamily, qui a atteint 2 200 membres dans le monde entier. Je suis devenu mod\u00e9rateur du groupe il y a dix ans, ainsi que le webmestre de notre site web public. Je retire beaucoup de cette relation. Au fil des ans, j\u2019ai rencontr\u00e9 de nombreux survivants du lymphome et de nombreux soignants. Les contacts se font souvent en ligne, mais aussi parfois en personne lors de rassemblements ou \u00e0 l\u2019occasion du Forum nord-am\u00e9ricain d’\u00e9ducation sur le lymphome. Notre groupe a guid\u00e9 ces gens dans le processus d\u2019apprentissage, et les a soutenus durant des moments de stress et d\u2019inqui\u00e9tude. Faire partie d\u2019une si grande communaut\u00e9 de personnes atteintes du lymphome contribue \u00e0 briser la solitude chez plusieurs. Il devient aussi beaucoup plus facile d\u2019exprimer ses pens\u00e9es et ses inqui\u00e9tudes sans accabler parents, amis et proches.<\/p>\n

Un groupe de soutien en ligne tel que le n\u00f4tre ne remplace pas le soutien, l\u2019amour et la compr\u00e9hension qu\u2019il est n\u00e9cessaire d\u2019obtenir de ses proches et de ses amis. Il s\u2019agit d\u2019un excellent compl\u00e9ment au fort r\u00e9seau de soutien dont nous avons tous besoin pour traverser les \u00e9preuves du lymphome et franchir les difficult\u00e9s auxquelles nous faisons face. Je n\u2019y serais jamais parvenu durant 15 ans sans ma NHL Cyberfamily.<\/p>\n

Webmestre et mod\u00e9rateur de NHL Cyberfamily : http:\/\/www.nhlcyberfamily.org<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

In 1996 a young man from Las Vegas, Nevada named Scott Pallack was diagnosed with non-Hodgkin lymphoma. Scott soon discovered that there was an unmet need for people with this…<\/p>\n","protected":false},"author":1,"featured_media":1575,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[15],"tags":[],"class_list":{"0":"post-1969","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-blogue"},"acf":[],"yoast_head":"\nLe webmestre - Lymphoma Canada<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lymphoma.ca\/fr\/le-webmestre\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le webmestre - Lymphoma Canada\" \/>\n<meta property=\"og:description\" content=\"In 1996 a young man from Las Vegas, Nevada named Scott Pallack was diagnosed with non-Hodgkin lymphoma. 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