{"id":19945,"date":"2026-02-28T13:33:59","date_gmt":"2026-02-28T13:33:59","guid":{"rendered":"https:\/\/www.lymphoma.ca\/?p=19945"},"modified":"2026-02-28T13:50:23","modified_gmt":"2026-02-28T13:50:23","slug":"rare-lymphoma-subtypes-patient-stories-2","status":"publish","type":"post","link":"https:\/\/www.lymphoma.ca\/fr\/rare-lymphoma-subtypes-patient-stories-2\/","title":{"rendered":"Sous\u2011types rares de lymphome : Histoires de patients"},"content":{"rendered":"[vc_row type=\u00a0\u00bbin_container\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n

Les t\u00e9moignages de personnes touch\u00e9es par des sous\u2011types rares de lymphome<\/strong><\/span><\/h2>\n

Recevoir un diagnostic d\u2019un sous\u2011type rare de lymphome peut \u00eatre une exp\u00e9rience profond\u00e9ment isolante. En raison d\u2019un manque de sensibilisation et de parcours de traitement moins \u00e9tablis, les patients et leurs familles doivent souvent composer avec l\u2019incertitude tout en cherchant des renseignements fiables et du soutien.<\/p>\n

Cette page rassemble les voix de plusieurs personnes ayant \u00e9t\u00e9 touch\u00e9es par des sous\u2011types rares de lymphome. \u00c0 travers leurs histoires, patients et proches partagent leur parcours vers le diagnostic, leurs exp\u00e9riences de traitement et la r\u00e9alit\u00e9 quotidienne d\u2019une maladie rare. Ces t\u00e9moignages mettent en lumi\u00e8re non seulement les complexit\u00e9s m\u00e9dicales des lymphomes rares, mais aussi les impacts \u00e9motionnels, sociaux et pratiques trop souvent n\u00e9glig\u00e9s.<\/p>\n

En partageant ces exp\u00e9riences v\u00e9cues, nous souhaitons sensibiliser, amplifier les voix des personnes touch\u00e9es par des lymphomes rares et faire en sorte que leurs r\u00e9alit\u00e9s soient vues, entendues et reconnues.[\/vc_column_text][\/vc_column][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb][\/vc_column][\/vc_row][vc_row type=\u00a0\u00bbin_container\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb bg_color=\u00a0\u00bbrgba(233,233,233,0.33)\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb shape_type=\u00a0\u00bb\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb2\/3″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n

Lymphome B primitif du m\u00e9diastin (LBPM) : L\u2019histoire de Jen<\/strong><\/h2>\n

Le parcours de Jen avec le LBPM a commenc\u00e9 \u00e0 un moment parmi les plus heureux de sa vie : l\u2019arriv\u00e9e de sa fille tant attendue. Durant le troisi\u00e8me trimestre de sa grossesse, elle ressentait une douleur importante qui a d’abord \u00e9t\u00e9 attribu\u00e9e \u00e0 la grossesse. Apr\u00e8s avoir contract\u00e9 la COVID\u201119 et subi une c\u00e9sarienne compliqu\u00e9e, Jen continuait de faire des fi\u00e8vres persistantes. 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Lymphome T monomorphe \u00e9pith\u00e9liotrope de l\u2019intestin (MEITL) : Zhou Zhou raconte l\u2019histoire de son p\u00e8re<\/strong><\/h2>\n

En janvier 2025, le p\u00e8re de Zhou Zhou a \u00e9t\u00e9 transport\u00e9 \u00e0 l\u2019urgence en raison d\u2019une douleur abdominale s\u00e9v\u00e8re et d\u2019une perte de poids importante. Des images ont r\u00e9v\u00e9l\u00e9 une perforation de l\u2019intestin gr\u00eale, n\u00e9cessitant une chirurgie d\u2019urgence la m\u00eame nuit. Peu apr\u00e8s, la famille a appris que la perforation \u00e9tait caus\u00e9e par un lymphome. 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Lymphome T sous\u2011cutan\u00e9 de type panniculite (LTSP) : L\u2019histoire de Harjeet<\/strong><\/h2>\n

En mai 2019, Harjeet a commenc\u00e9 \u00e0 souffrir de fi\u00e8vres \u00e9lev\u00e9es persistantes sans cause apparente. Des mois de consultations \u00e0 l\u2019urgence, de scans, de biopsies et d\u2019examens approfondis n\u2019ont apport\u00e9 aucune r\u00e9ponse claire \u2014 seulement une gestion temporaire des sympt\u00f4mes. Une biopsie finale a finalement confirm\u00e9 un lymphome LTSP au stade 4. Harjeet a commenc\u00e9 la chimioth\u00e9rapie en ao\u00fbt 2019 et a compl\u00e9t\u00e9 12 cycles, atteignant…[\/vc_column_text][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb40″][nectar_btn size=\u00a0\u00bblarge\u00a0\u00bb button_style=\u00a0\u00bbregular\u00a0\u00bb button_color_2=\u00a0\u00bbAccent-Color\u00a0\u00bb icon_family=\u00a0\u00bbnone\u00a0\u00bb text=\u00a0\u00bbLire plus\u00a0\u00bb url=\u00a0\u00bb#Harjeet\u00a0\u00bb][\/vc_column][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb 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column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb2\/3″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n

Macroglobulin\u00e9mie de Waldenstr\u00f6m (MW) : L\u2019histoire de Steven<\/strong><\/h2>\n

Steven a re\u00e7u un diagnostic de MW en 2014 apr\u00e8s avoir remarqu\u00e9 des taches violac\u00e9es sur ses jambes et d\u00e9couvert que son taux d\u2019IgM \u00e9tait anormalement \u00e9lev\u00e9. Il d\u00e9crit son approche de la maladie ainsi : \u00ab\u202fUn jour \u00e0 la fois.\u202f\u00bb Son parcours a \u00e9t\u00e9 particuli\u00e8rement difficile puisque, l\u2019ann\u00e9e pr\u00e9c\u00e9dente, en 2013, il avait \u00e9t\u00e9 hospitalis\u00e9 et diagnostiqu\u00e9 avec un diab\u00e8te de type 2, compliquant davantage sa prise en charge. Au fil des ann\u00e9es…[\/vc_column_text][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb40″][nectar_btn size=\u00a0\u00bblarge\u00a0\u00bb button_style=\u00a0\u00bbregular\u00a0\u00bb button_color_2=\u00a0\u00bbAccent-Color\u00a0\u00bb icon_family=\u00a0\u00bbnone\u00a0\u00bb text=\u00a0\u00bbLire plus\u00a0\u00bb url=\u00a0\u00bb#Steven\u00a0\u00bb][\/vc_column][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ 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Lymphome du manteau (MCL) : L\u2019histoire de Susan<\/strong><\/h2>\n

Susan a re\u00e7u un diagnostic de lymphome du manteau en septembre 2020. Elle ne pr\u00e9sentait aucun sympt\u00f4me important, mis \u00e0 part une rate tr\u00e8s hypertrophi\u00e9e \u2014 presque deux fois sa taille normale \u2014 et des analyses sanguines anormales indiquant un faible taux de plaquettes et un taux \u00e9lev\u00e9 de globules blancs. Elle a entrepris un traitement en octobre 2020 comprenant de la bendamustine et du rituximab durant six mois. Elle a relativement bien tol\u00e9r\u00e9…[\/vc_column_text][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb40″][nectar_btn size=\u00a0\u00bblarge\u00a0\u00bb button_style=\u00a0\u00bbregular\u00a0\u00bb button_color_2=\u00a0\u00bbAccent-Color\u00a0\u00bb icon_family=\u00a0\u00bbnone\u00a0\u00bb text=\u00a0\u00bbLire plus\u00a0\u00bb url=\u00a0\u00bb#Susan\u00a0\u00bb][\/vc_column][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ 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alignment=\u00a0\u00bb\u00a0\u00bb border_radius=\u00a0\u00bbnone\u00a0\u00bb box_shadow=\u00a0\u00bbnone\u00a0\u00bb image_loading=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb100%\u00a0\u00bb max_width_mobile=\u00a0\u00bbdefault\u00a0\u00bb][\/vc_column][\/vc_row][vc_row type=\u00a0\u00bbin_container\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb 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row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb id=\u00a0\u00bbJen\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb shape_type=\u00a0\u00bb\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n

Lymphome B primitif du m\u00e9diastin (LBPM) : L\u2019histoire de Jen<\/strong><\/h2>\n

Le lymphome B primitif du m\u00e9diastin (LBPM) est un sous\u2011type rare de lymphome non hodgkinien qui se d\u00e9veloppe \u00e0 partir des lymphocytes B et se manifeste g\u00e9n\u00e9ralement sous forme de tumeur dans le m\u00e9diastin, la zone situ\u00e9e entre les poumons. Il repr\u00e9sente environ 2 \u00e0 4 % des cas de lymphome non hodgkinien et touche le plus souvent de jeunes adultes, en particulier des femmes. Bien qu\u2019il soit consid\u00e9r\u00e9 comme agressif, de nombreux patients r\u00e9pondent bien \u00e0 un traitement administr\u00e9 rapidement.<\/p>\n

\"\"<\/p>\n

Le parcours de Jen avec le LBPM a commenc\u00e9 \u00e0 un moment parmi les plus heureux de sa vie : l\u2019arriv\u00e9e de sa fille tant attendue.
\nDurant le troisi\u00e8me trimestre de sa grossesse, elle ressentait une douleur importante qui a d’abord \u00e9t\u00e9 attribu\u00e9e \u00e0 la grossesse. Apr\u00e8s avoir contract\u00e9 la COVID\u201119 et subi une c\u00e9sarienne compliqu\u00e9e, Jen continuait de pr\u00e9senter des fi\u00e8vres persistantes. Des examens suppl\u00e9mentaires, dont une radiographie pulmonaire, ont r\u00e9v\u00e9l\u00e9 une volumineuse masse m\u00e9diastinale. Elle a rapidement re\u00e7u un diagnostic de LBPM, avec une tumeur qui affectait sa respiration.<\/p>\n

Jen a d\u00e9but\u00e9 une chimioth\u00e9rapie urgente et a fait face \u00e0 plusieurs complications au cours de son traitement, notamment des infections, des r\u00e9actions aux m\u00e9dicaments, des caillots sanguins et la perte de cheveux. Malgr\u00e9 ces d\u00e9fis, elle a compl\u00e9t\u00e9 ses six mois de traitement avec succ\u00e8s. Sa tumeur a diminu\u00e9, et elle est maintenant en r\u00e9mission depuis plusieurs ann\u00e9es.<\/p>\n

Jen croit que sa fille lui a sauv\u00e9 la vie, puisque l\u2019accouchement a men\u00e9 aux examens qui ont permis de d\u00e9couvrir son cancer. Aujourd\u2019hui, elle partage son histoire pour offrir de l\u2019espoir et sensibiliser aux lymphomes rares comme le LBPM. Elle encourage les autres \u00e0 s\u2019affirmer, \u00e0 rester pers\u00e9v\u00e9rants lorsque quelque chose ne semble pas normal et \u00e0 ne jamais cesser de demander de l\u2019aide.<\/p>\n

Comme le dit Jen : \u00ab Suivez vos progr\u00e8s et informez\u2011vous sur votre diagnostic. M\u00eame si cela peut \u00eatre effrayant, plus vous en savez, mieux vous pouvez vous d\u00e9fendre. \u00bb Son parcours rappelle qu\u2019en d\u00e9pit des moments difficiles, la connaissance, la pers\u00e9v\u00e9rance et l\u2019autod\u00e9fense peuvent faire une r\u00e9elle diff\u00e9rence.[\/vc_column_text][\/vc_column][\/vc_row][vc_row type=\u00a0\u00bbin_container\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb id=\u00a0\u00bbZhou\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb shape_type=\u00a0\u00bb\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n

Lymphome T monomorphe \u00e9pith\u00e9liotrope de l\u2019intestin (MEITL) : Zhou Zhou partage l\u2019histoire de son p\u00e8re<\/strong><\/h2>\n

Le lymphome T monomorphe \u00e9pith\u00e9liotrope de l\u2019intestin (MEITL) est un sous\u2011type extr\u00eamement rare et agressif de lymphome T p\u00e9riph\u00e9rique. Il se d\u00e9veloppe \u00e0 partir de lymphocytes T anormaux pr\u00e9sents dans la muqueuse de l\u2019intestin gr\u00eale et se caract\u00e9rise par une progression rapide et des complications graves, notamment des perforations intestinales, des obstructions et des saignements. Le MEITL fait partie des lymphomes T intestinaux et se comporte de fa\u00e7on beaucoup plus agressive que de nombreux lymphomes B plus courants.<\/p>\n

Au Canada, les lymphomes T repr\u00e9sentent seulement environ 10 \u00e0 15 % de tous les lymphomes non hodgkiniens, et le MEITL n\u2019en constitue qu\u2019une infime fraction. Cela signifie que seulement quelques Canadiens re\u00e7oivent ce diagnostic chaque ann\u00e9e. En raison de sa raret\u00e9, la recherche est limit\u00e9e comparativement aux lymphomes plus fr\u00e9quents, et les r\u00e9sultats restent souvent difficiles. Plusieurs patients n\u00e9cessitent une chimioth\u00e9rapie intensive et, m\u00eame ainsi, les taux de rechute demeurent \u00e9lev\u00e9s. Il est essentiel d\u2019am\u00e9liorer l\u2019acc\u00e8s aux traitements \u00e9mergents et de poursuivre les efforts de recherche au Canada.<\/p>\n

\"\"<\/p>\n

En janvier 2025, le p\u00e8re de Zhou Zhou a \u00e9t\u00e9 transport\u00e9 d\u2019urgence \u00e0 l\u2019h\u00f4pital en raison d\u2019une douleur abdominale s\u00e9v\u00e8re et d\u2019une perte de poids importante. Les examens d\u2019imagerie ont r\u00e9v\u00e9l\u00e9 une perforation de l\u2019intestin gr\u00eale, et il a subi une chirurgie d\u2019urgence la m\u00eame nuit. Peu apr\u00e8s, la famille a appris que la perforation \u00e9tait caus\u00e9e par un lymphome. Des tests suppl\u00e9mentaires ont confirm\u00e9 un diagnostic de MEITL \u2014 une maladie dont ils n\u2019avaient jamais entendu parler auparavant.<\/p>\n

Il a commenc\u00e9 la chimioth\u00e9rapie alors qu\u2019il se remettait encore d\u2019une chirurgie majeure. Les mois suivants ont \u00e9t\u00e9 marqu\u00e9s par de longues hospitalisations, des complications infectieuses et des traitements intensifs. Malgr\u00e9 la chimioth\u00e9rapie administr\u00e9e comme pr\u00e9vu, son \u00e9tat est devenu de plus en plus complexe.<\/p>\n

Au d\u00e9but de mai, les m\u00e9decins ont confirm\u00e9 que le lymphome avait progress\u00e9. Les traitements n\u2019avaient pas \u00e9t\u00e9 efficaces, et il \u00e9tait trop affaibli pour poursuivre d\u2019autres th\u00e9rapies. Avec peu d\u2019options restantes, la famille a pris la d\u00e9cision difficile de privil\u00e9gier le confort et la qualit\u00e9 de vie. Il est d\u00e9c\u00e9d\u00e9 le 19 mai 2025, \u00e0 l\u2019\u00e2ge de 56 ans.<\/p>\n

Aujourd\u2019hui, Zhou Zhou partage l\u2019histoire de son p\u00e8re afin de sensibiliser le public aux lymphomes T rares comme le MEITL. Il esp\u00e8re que gr\u00e2ce \u00e0 la recherche continue, \u00e0 un meilleur acc\u00e8s aux th\u00e9rapies \u00e9mergentes et \u00e0 une sensibilisation accrue au Canada, les futurs patients disposeront de plus d\u2019options de traitement et de meilleurs r\u00e9sultats.<\/p>\n

Pour en savoir plus sur les lymphomes T p\u00e9riph\u00e9riques, vous pouvez visionner la s\u00e9ance de conf\u00e9rence de Lymphoma Canada pr\u00e9sent\u00e9e par la Dre Kerry Savage : <\/strong>https:\/\/www.youtube.com\/watch?v=LyFVpiePJQE<\/a>[\/vc_column_text][\/vc_column][\/vc_row][vc_row type=\u00a0\u00bbin_container\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb id=\u00a0\u00bbHarjeet\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb shape_type=\u00a0\u00bb\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n

Lymphome T sous\u2011cutan\u00e9 de type panniculite (LTSP) : L\u2019histoire de Harjeet<\/strong><\/h2>\n

Le lymphome T sous\u2011cutan\u00e9 de type panniculite (LTSP) est un sous\u2011type extr\u00eamement rare de lymphome T qui touche principalement le tissu adipeux sous la peau. Il est class\u00e9 parmi les lymphomes T p\u00e9riph\u00e9riques et ne repr\u00e9sente qu\u2019une tr\u00e8s petite fraction des cas de lymphome non hodgkinien au Canada. En raison de sa raret\u00e9, le diagnostic peut \u00eatre complexe et les patients peuvent faire face \u00e0 des retards avant d\u2019obtenir des r\u00e9ponses claires.<\/p>\n

\"\"<\/p>\n

En mai 2019, Harjeet a commenc\u00e9 \u00e0 souffrir de fi\u00e8vres \u00e9lev\u00e9es persistantes sans cause apparente. Des mois de visites \u00e0 l\u2019urgence, de scans, de biopsies et de tests approfondis n\u2019ont men\u00e9 \u00e0 aucun diagnostic pr\u00e9cis \u2014 seulement \u00e0 une gestion temporaire des sympt\u00f4mes.<\/p>\n

Une biopsie finale a finalement confirm\u00e9 un LTSP au stade 4. Harjeet a commenc\u00e9 la chimioth\u00e9rapie en ao\u00fbt 2019 et a compl\u00e9t\u00e9 12 cycles, atteignant une r\u00e9mission partielle. En avril 2020, au plus fort de la pand\u00e9mie de COVID\u201119, elle a subi une greffe de cellules souches, son fr\u00e8re agissant comme donneur. La greffe a n\u00e9cessit\u00e9 une p\u00e9riode d\u2019isolement de 32 jours sans visiteurs. Ce fut une exp\u00e9rience exigeante, tant physiquement qu\u2019\u00e9motionnellement \u2014 mais qui s\u2019est r\u00e9v\u00e9l\u00e9e r\u00e9ussie.<\/p>\n

Aujourd\u2019hui, Harjeet est une survivante. Sept ans apr\u00e8s son diagnostic et six ans apr\u00e8s sa greffe, elle n\u2019a aucune preuve de maladie et poursuit un suivi m\u00e9dical r\u00e9gulier.
\n\u00ab\u202fComme mon cancer du sang \u00e9tait si rare et \u00e0 un stade avanc\u00e9, je ne trouvais personne ayant un type de cancer similaire, ce qui rendait les choses encore plus difficiles. J\u2019ai rejoint la communaut\u00e9 de Lymphoma Canada pour trouver du soutien et des liens.\u202f\u00bb<\/p>\n

L\u2019engagement communautaire est tr\u00e8s important pour Harjeet. L\u2019an dernier, elle a particip\u00e9 \u00e0 un panel lors de la conf\u00e9rence de Lymphoma Canada, o\u00f9 elle a partag\u00e9 son exp\u00e9rience et soulign\u00e9 l\u2019importance de la voix des patients dans la prise de d\u00e9cisions partag\u00e9e.<\/p>\n

Visionnez la discussion \u00ab\u202fPrise de d\u00e9cision partag\u00e9e \u2013 Aligner le traitement avec ce qui compte le plus\u202f\u00bb ici : <\/strong>https:\/\/www.youtube.com\/watch?v=FOGMqvg7mf0<\/strong><\/a>[\/vc_column_text][\/vc_column][\/vc_row][vc_row type=\u00a0\u00bbin_container\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb id=\u00a0\u00bbSteven\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb shape_type=\u00a0\u00bb\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n

Macroglobulin\u00e9mie de Waldenstr\u00f6m (MW) : L\u2019histoire de Steven<\/strong><\/h2>\n

La macroglobulin\u00e9mie de Waldenstr\u00f6m (MW) est un type rare et \u00e0 progression lente de lymphome non hodgkinien, un cancer du sang et du syst\u00e8me immunitaire. Dans la MW, le corps produit en exc\u00e8s une prot\u00e9ine anormale appel\u00e9e IgM (immunoglobuline M), un anticorps normalement destin\u00e9 \u00e0 combattre les infections. Lorsque le taux d\u2019IgM devient trop \u00e9lev\u00e9, le sang peut s\u2019\u00e9paissir, entra\u00eenant des sympt\u00f4mes tels que fatigue, faiblesse, maux de t\u00eate, troubles de la vision ou probl\u00e8mes de saignement.<\/p>\n

La MW est peu fr\u00e9quente au Canada et ailleurs dans le monde. Comme elle peut se manifester diff\u00e9remment d\u2019une personne \u00e0 l\u2019autre, les patients n\u00e9cessitent g\u00e9n\u00e9ralement une surveillance r\u00e9guli\u00e8re et un plan de traitement personnalis\u00e9 selon leurs sympt\u00f4mes et leur \u00e9tat de sant\u00e9 global.<\/p>\n

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Steven a re\u00e7u un diagnostic de MW en 2014 apr\u00e8s avoir remarqu\u00e9 des taches violac\u00e9es sur ses jambes et d\u00e9couvert que son taux d\u2019IgM \u00e9tait anormalement \u00e9lev\u00e9. Il d\u00e9crit son approche de la maladie ainsi : \u00ab\u202fUn jour \u00e0 la fois.\u202f\u00bb Son parcours a \u00e9t\u00e9 particuli\u00e8rement difficile puisqu\u2019en 2013, l\u2019ann\u00e9e pr\u00e9c\u00e9dant son diagnostic, il avait \u00e9t\u00e9 hospitalis\u00e9 et avait re\u00e7u un diagnostic de diab\u00e8te de type 2, ce qui a ajout\u00e9 de la complexit\u00e9 \u00e0 sa prise en charge.<\/p>\n

Au fil des ann\u00e9es, Steven a re\u00e7u plusieurs traitements, incluant le rituximab avec cyclophosphamide, l\u2019ibrutinib (Imbruvica), la th\u00e9rapie IVIG et, plus r\u00e9cemment, le zanubrutinib (Brukinsa). Il a d\u00fb naviguer entre plusieurs villes et consulter diff\u00e9rents sp\u00e9cialistes afin de g\u00e9rer sa condition.<\/p>\n

Steven partage aujourd\u2019hui son histoire pour encourager d\u2019autres personnes vivant avec des lymphomes rares, soulignant l\u2019importance de la pers\u00e9v\u00e9rance, de l\u2019autod\u00e9fense et du maintien de liens avec des \u00e9quipes de soins bien inform\u00e9es.<\/p>\n

Pour en savoir plus sur la prise en charge de la macroglobulin\u00e9mie de Waldenstr\u00f6m, visionnez la session de conf\u00e9rence de Lymphoma Canada pr\u00e9sent\u00e9e par le Dr Neil Berinstein : <\/strong>https:\/\/www.youtube.com\/watch?v=ciBR4AqbKio<\/strong><\/a>[\/vc_column_text][\/vc_column][\/vc_row][vc_row type=\u00a0\u00bbin_container\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb id=\u00a0\u00bbSusan\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb shape_type=\u00a0\u00bb\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n

Lymphome du manteau (MCL) : L\u2019histoire de Susan<\/strong><\/h2>\n

Le lymphome du manteau (MCL) est un type rare de cancer du sang qui se d\u00e9veloppe dans le syst\u00e8me lymphatique, une partie essentielle du syst\u00e8me immunitaire. Il provient de lymphocytes B anormaux (un type de globule blanc) situ\u00e9s dans la \u00ab\u202fzone du manteau\u202f\u00bb des ganglions lymphatiques. Le MCL est un lymphome non hodgkinien (LNH) \u00e0 cellules B matures et repr\u00e9sente environ 3 \u00e0 10\u202f% des nouveaux cas de LNH au Canada. Il est g\u00e9n\u00e9ralement diagnostiqu\u00e9 chez les adultes de plus de 60 ans et survient plus fr\u00e9quemment chez les hommes. En raison de sa raret\u00e9, de nombreux Canadiens n\u2019en ont jamais entendu parler avant leur diagnostic.<\/p>\n

Susan a re\u00e7u un diagnostic de lymphome du manteau en septembre 2020. Elle ne pr\u00e9sentait aucun sympt\u00f4me majeur \u00e0 ce moment\u2011l\u00e0, sauf une rate hypertrophi\u00e9e \u2014 presque deux fois sa taille normale \u2014 et des analyses sanguines anormales indiquant un faible taux de plaquettes et un taux \u00e9lev\u00e9 de globules blancs. Elle a commenc\u00e9 son traitement en octobre 2020, recevant de la bendamustine et du rituximab pendant six mois. Elle a relativement bien tol\u00e9r\u00e9 le traitement et, en mars 2021, apr\u00e8s avoir compl\u00e9t\u00e9 la th\u00e9rapie, on lui a annonc\u00e9 qu\u2019elle \u00e9tait en r\u00e9mission \u2014 un \u00e9tat qu\u2019elle maintient encore aujourd\u2019hui.<\/p>\n

\u00c0 la suite de son traitement initial, Susan a re\u00e7u des injections d\u2019entretien de rituximab tous les trois mois pendant une ann\u00e9e suppl\u00e9mentaire, pour terminer cette phase en janvier 2023. Bien qu\u2019elle s\u2019inqui\u00e8te parfois de la possibilit\u00e9 d\u2019une rechute, elle s\u2019efforce consciemment de vivre pleinement et de profiter de chaque journ\u00e9e.<\/p>\n

Susan encourage les personnes qui re\u00e7oivent un diagnostic \u00e0 avoir confiance en leurs sp\u00e9cialistes \u2014 \u00ab\u202fils sont vraiment l\u00e0 pour vous\u202f\u00bb. Elle participe aussi r\u00e9guli\u00e8rement aux webinaires \u00e9ducatifs de Lymphoma Canada, ce qui lui permet de demeurer inform\u00e9e et connect\u00e9e \u00e0 la communaut\u00e9 du lymphome.<\/p>\n

Pour en savoir plus sur la prise en charge du lymphome du manteau, visionnez la s\u00e9ance de conf\u00e9rence de Lymphoma Canada pr\u00e9sent\u00e9e par la Dre Mary Margaret Keating : <\/strong>https:\/\/www.youtube.com\/watch?v=ZnjJq4jFod8<\/strong><\/a>[\/vc_column_text][\/vc_column][\/vc_row][vc_row type=\u00a0\u00bbfull_width_background\u00a0\u00bb full_screen_row_position=\u00a0\u00bbmiddle\u00a0\u00bb column_margin=\u00a0\u00bbdefault\u00a0\u00bb column_direction=\u00a0\u00bbdefault\u00a0\u00bb column_direction_tablet=\u00a0\u00bbdefault\u00a0\u00bb column_direction_phone=\u00a0\u00bbdefault\u00a0\u00bb bg_color=\u00a0\u00bbrgba(233,233,233,0.33)\u00a0\u00bb scene_position=\u00a0\u00bbcenter\u00a0\u00bb text_color=\u00a0\u00bbdark\u00a0\u00bb text_align=\u00a0\u00bbleft\u00a0\u00bb row_border_radius=\u00a0\u00bbnone\u00a0\u00bb row_border_radius_applies=\u00a0\u00bbbg\u00a0\u00bb overflow=\u00a0\u00bbvisible\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb shape_divider_position=\u00a0\u00bbbottom\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb gradient_type=\u00a0\u00bbdefault\u00a0\u00bb shape_type=\u00a0\u00bb\u00a0\u00bb][vc_column column_padding=\u00a0\u00bbno-extra-padding\u00a0\u00bb column_padding_tablet=\u00a0\u00bbinherit\u00a0\u00bb column_padding_phone=\u00a0\u00bbinherit\u00a0\u00bb column_padding_position=\u00a0\u00bball\u00a0\u00bb column_element_direction_desktop=\u00a0\u00bbdefault\u00a0\u00bb column_element_spacing=\u00a0\u00bbdefault\u00a0\u00bb desktop_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb tablet_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb phone_text_alignment=\u00a0\u00bbdefault\u00a0\u00bb background_color_opacity=\u00a0\u00bb1″ background_hover_color_opacity=\u00a0\u00bb1″ column_backdrop_filter=\u00a0\u00bbnone\u00a0\u00bb column_shadow=\u00a0\u00bbnone\u00a0\u00bb column_border_radius=\u00a0\u00bbnone\u00a0\u00bb column_link_target=\u00a0\u00bb_self\u00a0\u00bb column_position=\u00a0\u00bbdefault\u00a0\u00bb gradient_direction=\u00a0\u00bbleft_to_right\u00a0\u00bb overlay_strength=\u00a0\u00bb0.3″ width=\u00a0\u00bb1\/1″ tablet_width_inherit=\u00a0\u00bbdefault\u00a0\u00bb animation_type=\u00a0\u00bbdefault\u00a0\u00bb bg_image_animation=\u00a0\u00bbnone\u00a0\u00bb border_type=\u00a0\u00bbsimple\u00a0\u00bb column_border_width=\u00a0\u00bbnone\u00a0\u00bb column_border_style=\u00a0\u00bbsolid\u00a0\u00bb][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb40″][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb40″][vc_column_text css=\u00a0\u00bb\u00a0\u00bb text_direction=\u00a0\u00bbdefault\u00a0\u00bb]\n

Ressources suppl\u00e9mentaires :<\/strong><\/h3>\n

Pour obtenir de l\u2019information sur nos webinaires pass\u00e9s et \u00e0 venir, veuillez visiter : https:\/\/www.lymphoma.ca\/news-events\/educational-forums-webinars\/<\/a><\/p>\n

Participez \u00e0 notre groupe de soutien virtuel mensuel : Lymphoma Canada Wellspring Support Group \u2013 Lymphoma Canada<\/a><\/p>\n

Pour acc\u00e9der \u00e0 notre programme de mentorat par les pairs (soutien individuel), visitez : https:\/\/www.lymphoma.ca\/resources\/support\/peer-support-program\/<\/a><\/p>\n

Pour aider \u00e0 faire avancer la recherche et \u00e0 am\u00e9liorer l\u2019avenir des personnes touch\u00e9es par un lymphome au Canada, veuillez envisager de soutenir Lymphoma Canada par un don.[\/vc_column_text][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb40″][nectar_btn size=\u00a0\u00bblarge\u00a0\u00bb button_style=\u00a0\u00bbregular\u00a0\u00bb button_color_2=\u00a0\u00bbAccent-Color\u00a0\u00bb icon_family=\u00a0\u00bbnone\u00a0\u00bb text=\u00a0\u00bbFaites un don\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/secure.e2rm.com\/registrant\/DonationPage.aspx?eventid=121854″][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb40″][divider line_type=\u00a0\u00bbNo Line\u00a0\u00bb custom_height=\u00a0\u00bb40″][\/vc_column][\/vc_row]\n","protected":false},"excerpt":{"rendered":"

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